Trying again here! And special thanks to Elijah for humoring me with more pictures.
I just finished reading Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties. I found the last section, regarding relationships, the most useful. Though what I could really use right now is resources on parenting chronically ill children. So if anyone has suggestions there, please pass them along.
In her chapter about what she terms “Meltdown Mode”, she talks about how she could handle a seemingly endless barge of medical interventions, pain, and life threatening emergencies with grace and aplomb, only to break down, crying hysterically upon finding the wrong type of salad dressing in her take out bag. On top of everything else to have some basic simple thing go wrong…you think, “I can’t even have this work out?!?” It feels like a slap in the face. I get it. I’ve thought it. I’ve done it.
And we all of us have our different break-down issues. She goes on to say that her chronically ill father tends to lose it over waiting in lines or vague and confusing instruction manuals. For me, I’ve come to see that clothing is a falling apart issue for me. It’s hard enough to have the energy to get out the door, factor in corralling and organizing five children, and then to be faced with having nothing to wear that fits right or is comfortable or appropriate as well? Too much. I think that was kind of what I was trying to say with this post. And why this project, which may seem frivolous and silly to some, is so important to me.
A very happy Thanksgiving to those of you in the US. And I hope that all of you, everywhere, have a great many things to be happy for today. love, Melody